#WorldAlzheimersDay – who is protecting whom?

Assessing risk is a critical part of English dementia policy at all levels. I again found myself talking about risk as I saw responses to World Alzheimer’s Day which was yesterday on September 22nd 2015. I don’t especially like the term ‘wandering’ for people with dementia. This term, like ‘challenging behaviours’ has become seemingly legitimised through […]

The World Dementia Council will be much stronger from democratic representation from leaders living with dementia

There is no doubt the ‘World Dementia Council’ (WDC) is a very good thing. It contains some very strong people in global dementia policy, and will be a real ‘force for change’, I feel. But recently the Dementia Alliance International (DAI) have voiced concerns about lack of representation of people with dementia on the WDC […]

Meeting other people living with posterior cortical atrophy

Even The Man Who Mistook His Wife for a Hat, from Oliver Sacks’ famous book, has since been speculated to have suffered from posterior cortical atrophy (PCA). A dementia is not a natural part of ageing. Dementia is caused by diseases of the brain. It’s not just about losing your memory. It’s possible to live well with […]

“Stop using stigma to raise money for us”, says a leading advocate living well with dementia

Let me introduce you to Dr Richard Taylor, a member of the Dementia Alliance International living well with dementia, in case you’ve never heard of Richard. “We shouldn’t be put on ice”, remarks Taylor. “Or when we shouldn’t be put in a freezer, when we our caregivers go on holiday. We too should take a […]

Policy makers should listen to this message from Richard Taylor, Dementia Alliance International

There is a motto in the National Health Service, used to varying degrees of success, which goes ‘No decision about me without me.” We are currently in the middle of Dementia Awareness Week 2014 (18 May – 24 May 2014). It is therefore timely that Richard Taylor has provided this comment, as a member of […]

A powerful group led by persons with dementia may be just the disruptive innovation the world needs

This, rather than “The Golden Arches”, is fast becoming a symbol of hope. The motor vehicle was supposed to be a major disruption for the horse and cart. Paper superseded parchment. The DVD long surpassed the audio cassette. Progress and innovation, whatever your political philosophy, some might say is pretty inevitable. In terms of technology, […]