Does combating stigma offend the ‘rights based approach’ in dementia?

Let’s for the sake of brevity keep the definition of ‘stigma’ short – but of course it has to be attempted in some way. Stigma, according to the current Oxford English Dictionary is defined as follows firstly. “A mark of disgrace associated with a particular circumstance, quality, or person:the stigma of mental disorder to be […]

Stigma in dementia poses crucial questions for dementia friendly communities

The literature on stigma is comprehensive. But Kate Swaffer added to it beautifully in the journal ‘Dementia’, with an article today – on open access – entitled “Dementia: Stigma, language and dementia friendly”. Kate refers to a blogpost by Ken Clasper, a Dementia Friends Champion, which asks, sensibly, what we are trying to achieve with […]

The Dementia Alliance International is not a convenient marketing tool for dementia salesmen

The following is the draft of an extract from my chapter “Stigma, citizenship and living better with dementia” in “Living better with dementia: how champions can break down the barriers”, by Shibley Rahman with Forewords by Prof Alistair Burns, Kate Swaffer and Chris Roberts.   The really important question therefore is: how can people living […]

My personal experience of an introductory day to ‘Dementia Friends’ Champions

OK it’s not heaven on earth – but Kentish Town London does have some merits I suppose. To say that I am passionate about the dementia policy in England is an understatement. Throwing forward, I believe living well with dementia is a crucial policy plank (here’s my article in ‘ETHOS journal’), for which service provision […]

If you’re an unpleasant person, a week of ‘dementia awareness’ will make no difference

There’ll be a third of people roughly who’ll hate whatever you do. There’ll be a third of people roughly who’ll love whatever you do. There’ll be a third of people roughly who’ll be completely indifferent.   This is advice my father gave to me shortly before he died. In society, there will always be a hardcore […]

Are individuals living with dementia “recipients” of care?

Language is very important. Only this week, the media was stuffed full of talk of dementia being a ‘horrible disease’, and people ‘suffering’. A recent Telegraph article cited, “Health Secretary Jeremy Hunt says it is “utterly shocking” that only half of people suffering from dementia are being formally diagnosed.” Society has a certain image of […]