I have not set out to build a social movement, but I want to do this for persons with early dementia

I received this message last night. The thing is, I don’t buy into the profoundly negative imagery of the media, including memes such as “crippling”, “horrific”, “timebomb” and “explosion”. Whilst some people, and caregivers, are undeniably “suffering”, you can’t expect all people to agree with this particular narrative at all times, I feel. One of […]

My plans for a crowdfunding campaign to empower decisions in people with early dementia

The power of decisions for people living with early dementia This project is dedicated to all persons living with dementia, carers and caregivers, all other people touched by dementia past present or future, and more. The need Decisions are crucial to our lives. Every person is unique. A person’s ability to make decisions is defined […]

Why I’m on a mission to explain the science of decisions to people living with mild dementia

As a person who is physically disabled, and who has a speech impediment due to a meningitis from 2007, I am more than aware of how people can talk down to you in a patronising way. It’s why I am very sensitive about language: for example, even with the best intentions in the world, “dementia […]

Chris Roberts’ plan to set up a dementia café: persons with dementia driving decision-making

There’s been a persistent concern amongst many academics and amongst many persons with dementia themselves that persons with dementia are not at the heart of decision-making in dementia-friendly communities. The notion of ‘no dementia about me without me’ has not been rigorously applied to dementia-friendly communities, with directors of strategy in corporates seeking to consider […]