A single cure is not the only hope for living better with dementia

Many people living with dementia, having been told to expect the worst sometimes from some professionals, find themselves surprised when they’ve found they’ve met some nice people after diagnosis, and learnt new things. And guess what? You do not have to be religious to have hopes. Addressing emotional and physical needs are important for meeting […]

Where now for the English dementia strategy? My views on policy. #kfdementia

It is estimated that in 2015 there will be 850,000 people living with dementia. Having decided at the beginning of last year that I would to any conferences on dementia, I found myself attending the Alzheimer’s Show in London Olympia and Manchester; the Alzheimer’s Association conference in Copenhagen of a book signing, Alzheimer’s Europe conference […]

A powerful group led by persons with dementia may be just the disruptive innovation the world needs

This, rather than “The Golden Arches”, is fast becoming a symbol of hope. The motor vehicle was supposed to be a major disruption for the horse and cart. Paper superseded parchment. The DVD long surpassed the audio cassette. Progress and innovation, whatever your political philosophy, some might say is pretty inevitable. In terms of technology, […]

A person newly diagnosed with dementia has a question for primary care, and primary care should know the answer

Picture this. It’s a busy GP morning surgery in London. A patient in his 50s, newly diagnosed with Alzheimer’s disease, a condition which causes a progressive decline in structure and function of the brain, has a simple question off his GP. “Now that I know that I have Alzheimer’s disease, how best can I look […]

A need for much more effective regulation for dementia charities

All governments in the UK have recently thought about ‘reforming public services’, mostly in the context of public-private partnerships (PPP) or the private finance initiative (PFI). Third sector organisations, such as social enterprises and charities, especially large ones, are acting in increasingly private or even corporate ways. Many feel that this has now become a […]

My name is Shibley, and I’m addicted to buying my own book ‘Living well with dementia’

I’ve sat in more recovery sessions than you’ve had hot dinners…. .. possibly. So I get a surge of dopamine whenever I receive yet more copies of my book from Amazon. Worth every penny. I am Shibley. and I’m addicted to buying my own book. But I also have a weird habit of getting people […]

The David and Goliath problems of the English Dementia Charities

To be clear, I think the work of the Alzheimer’s Society is fantastic. Since their restructuring, with the support of the Department of Health, they have done really important work in activities to do with dementia, not just Alzheimer’s disease. Goliath (Hebrew: גָּלְיָת,) is a a giant Philistine warrior defeated by the young David, the future king of Israel, […]

Blurred lines in English dementia policy – privatisation in all but name

In case you don’t like the soundtrack, here are the slides. To some extent, Europe resolved our dispute about whether we should aspire to an ‘early diagnosis’, or ‘timely diagnosis’ for dementia. The overall consensus from the European ALCOVE project was that a diagnosis should be timely, in keeping with the needs of the person […]

The real influencers of English dementia policy aside from #G8dementia

In a rather strange Stakhanovite way, certain health magazines are strangely obsessed with the fetish of the ‘top 100’. I am as such not a great advocate of, “Everybody has won, and all must have prizes.” immortalised by Chapter 3 of Lewis Carroll’s Alice’s Adventures in Wonderland, but as someone who has devoted all of […]